From an early age I always felt as though God had a specific purpose and plan for my life. With every surgery that I went through, He was preparing me for that plan. I had this feeling as though I was destined to do great things in life and while I didn’t exactly know what the plan was, when I was younger, as the years passed I started to realize that I was going to be the one to fight for my dwarfism. I was going to become the voice of Saul Wilson Syndrome.
Growing up I always thought of my life as “growing up in the medical world” and what I mean by that is, while I did have a good childhood, I always felt as though my life was being written so that the world could learn more about Saul Wilson Syndrome.
What makes my story so unique is the fact that I have fought long and hard this battle of life. I started by fighting every surgery and medical challenge I was faced, then I fought so that doctors would start to research my dwarfism (because no one was), then I fought to find at least one other person with Saul Wilson, so that doctors could compare DNA, then I fought to have a voice for my dwarfism. I have been fighting this fight since day one- and if truth be told I’m not really fighting it for me, I’m fighting it for the others out there.
I thank God every single day that I can be the one to fight for them, because when I was growing up I had my family and friends fighting for me, but I didn’t have anyone with my dwarfism fighting for me. I didn’t have anyone that I could write and ask questions or relate to. There were many nights that I spent depressed wishing I had answers and would turn to the internet to try and find some only to be left with nothing.
My goal is that no other child grow up that way because I got lucky. Somehow, I was strong enough to hold on even in the darkest of times. I rarely talk about the dark times because I didn’t think it was important to share that side of me, but I have also learned hiding it wasn’t good either.
So yes I believe that I have a very specific purpose in life and when I was around the age of 12, I remember thinking that there would come a time in my life when God would open that door and He would tell me “it’s time” and He has.
I don’t expect people to understand this, but sometimes in life you just know. And what I know is that I am destined for this certain path, a path that I envisioned years ago and no matter what happens down the road, I know it was all a part of God’s plan.