Dwarfism Awareness Fact #3
I was diagnosed with Saul Wilson Syndrome around the age 4 or 5. When I was diagnosed it wasn’t called Saul Wilson Syndrome it was referred to as the more medical terminology, Osteodysplastic Microcephalic Dysplasia.
Back then all we had was the name. Doctors couldn’t tell me what would be expected of my life. They didn’t know what I would face and I would have to deal with each challenge as they came. That made for a rough childhood as I faced many surgeries and even more doctors appointments. But I grew up with an amazing family support system that got me through it all.