Hello everyone,
Barcroft TV did a short documentary on my life and what it has been like trying to find answers. Please check out the article and video:
Barcroft TV
http://www.barcroft.tv/rare-dwarf-saul-wilson-syndrome-louisville-condition-doctors-help
I am so honored to share my story with the world. Please feel free to share the story on social media as my goal is to reach as large of an audience as I can in hopes to find more cases.
Right now there are only 14 cases known world wide and I am hoping by sharing my story people might see it and say “I think this is what I have”. I want them to know they are not alone!
I didn’t meet someone with my dwarfism until I was in my early twenties. I know what its like to spend years wondering why no one else out there had what I had or doctors couldn’t give me answers. My goal is that no other person has to feel that way.
