Documentary Debut Thanks to Barcroft TV

Hello everyone,

Barcroft TV did a short documentary on my life and what it has been like trying to find answers.  Please check out the article and video:

Barcroft TV

http://www.barcroft.tv/rare-dwarf-saul-wilson-syndrome-louisville-condition-doctors-help

I am so honored to share my story with the world.  Please feel free to share the story on social media as my goal is to reach as large of an audience as I can in hopes to find more cases.

Right now there are only 14 cases known world wide and I am hoping by sharing my story people might see it and say “I think this is what I have”.  I want them to know they are not alone!

I didn’t meet someone with my dwarfism until I was in my early twenties.  I know what its like to spend years wondering why no one else out there had what I had or doctors couldn’t give me answers.  My goal is that no other person has to feel that way.

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