Dealing with life

Getting older is never an easy thing.  I live with the very real and very scary fact that I have a 75 year old body trapped inside me at age 26.  We’ve learned that my body is aging 3 times as fast as I am and there’s not much we can do to prevent it.  I can take medicine that will help, but I don’t think it will stop or reverse it.  The only thing I can do is “deal with it” which I’m usually pretty good at, but after years of “dealing with it” it’s becoming harder to do.

I’ve “dealt” with these types of problems all my life.  I try really hard not to dwell on the bad stuff but after awhile you just get tired.

Tired of doctors, tired of medical information being thrown every which way, tired of medicine, tired of surgeries and anything else in between.  Tired of being given endless amount of information but never any true answers.

At age 26, I think about many “what if” situations but in my life my “what ifs” have a way of becoming much more real than most peoples.  I put a lot of thought and consideration into these situations because they usually become real or at least have a way of changing the direction of my life.  About the time I think I got it figured out, I’m sent down in another direction and have to figure out what it all means, and usually prevents me from getting any answers.

I hope one day that will all change and maybe I will have answers for anyone else out there like me.  My blog is the only information that’s available for my syndrome.  Yes there are a few medical journals from years ago, but as far as newer documentation, this blog is all that is out there.  My goal is to reach others with Saul Wilson and to give them a voice and let them know they aren’t alone.

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2 Responses to Dealing with life

  1. Jackie says:

    Dear Monica,

    You have so much to give in such a small amount of time. Don’t give up. Your nieces and nephews will always look up to you as their hero; a person to emulate and live their lives to their fullest to honor your memory. If we could all be fortune tellers, your fortune is already told in how you have lived your life. That is a testament that few of us can deliver even if we live to be 100 years old.

    Love ya muches,

    Aunt Jackie

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