Author Archives: littleperson123

Invitation to the National Institute of Health

On August 9, 2017 my mom came to me with a message that was left on our phone.  She told me she believed it was a doctors office that had called and she took down the number for me to … Continue reading

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The Best News of My Life

Growing up with a rare type of dwarfism there were no answers and I learned at a young age that I may never get answers and I learned to be “ok” with that. I faced a lot of tough challenges … Continue reading

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A Big Day For Saul Wilson Syndrome!

Today I am finally able to announce my big news.  Doctors have found the gene that causes Saul Wilson Syndrome! On August 11, 2017 doctors from Delaware called me to tell me that there had been a break through for … Continue reading

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I’ve always been a dreamer

I say I’ve always been a dreamer because I dream about a life that could be.  When I think about the life that I want or wish I could have, writing always comes to mind.  I’ve always wanted to write … Continue reading

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Update on Saul Wilson Syndrome

Hello everyone and thank you for all the comments in regards to the new documentary out of Denmark on Piet. This last year has been an interesting one when it comes to the latest news on Saul Wilson Syndrome.  Last … Continue reading

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Life Goals

So most people at a certain age set out to achieve life goals. Some people want to focus on their career.  Some want to get married and have a family.  Some want to explore the world.  There are so many … Continue reading

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Turning 30 and What It Means To Me

On May 28th 2018, I turned 30 years old.  For a lot of people turning 30 is a big deal.  But for me it was an even bigger deal. Turning 30 meant that I lived 25 more years longer than … Continue reading

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Dreaming About My Life

I never grew up dreaming of what my life would be like as an adult.  To be honest most of the time I wondered if I’d make it to adulthood. When you grow up facing medical challenges one after the … Continue reading

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American Medical Association Podcast

I had the honor of participating in a podcast for the American Medical Association Podcast, talking about treating the unknown.  Follow the link if you’d like to listen, its about a 25 minute talk. https://www.ama-assn.org/ama-doc-talk-podcast-series Select “Treating the Unknown”  

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So Much Has Happened

The last few years a lot has happened, most of it all happened all at once and it has been hard for me to accept all that has taken place and find peace with everything. I am hoping this is … Continue reading

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