Monthly Archives: October 2018

Invitation to the National Institute of Health

On August 9, 2017 my mom came to me with a message that was left on our phone.  She told me she believed it was a doctors office that had called and she took down the number for me to … Continue reading

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The Best News of My Life

Growing up with a rare type of dwarfism there were no answers and I learned at a young age that I may never get answers and I learned to be “ok” with that. I faced a lot of tough challenges … Continue reading

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A Big Day For Saul Wilson Syndrome!

Today I am finally able to announce my big news.  Doctors have found the gene that causes Saul Wilson Syndrome! On August 11, 2017 doctors from Delaware called me to tell me that there had been a break through for … Continue reading

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