Monthly Archives: February 2018

American Medical Association Podcast

I had the honor of participating in a podcast for the American Medical Association Podcast, talking about treating the unknown.  Follow the link if you’d like to listen, its about a 25 minute talk. https://www.ama-assn.org/ama-doc-talk-podcast-series Select “Treating the Unknown”  

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So Much Has Happened

The last few years a lot has happened, most of it all happened all at once and it has been hard for me to accept all that has taken place and find peace with everything. I am hoping this is … Continue reading

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Family Traditions

The last several years haven’t been easy for me.  Many people don’t know it either.  In the last 16 months so much has happened and I haven’t worked on processing it all and moving past it all.  But I know … Continue reading

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Talking With The Doctors

After that first phone call the next few weeks I spoke a few more times with the doctors.  They told me again the same information as before, but I didn’t care, I waited my whole life to hear what they … Continue reading

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The Day I Had Waited My Whole Life For

In August of 2017 I got a phone call from a group of doctors who have been working to help me find out more answers.  When I returned the phone call and listened to what the doctor started to tell … Continue reading

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I’m Writing So Others Can Learn

When I first started writing this blog, I did so because I was tired of googling “Saul Wilson Syndrome” and finding nothing.  I’d type that into google (that or the more technical term Osteodysplastic Microcephalic Dysplasia) and I’d scroll throughout … Continue reading

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